Hi Skip,
I read Brandon’s holiday letter to us and the phrase ‘let Grace use me’ stayed with me – and so that became words I spoke every day. Then it became ‘Grace lead me’ – and then the yellow brick road was there! When I was a trainer at an intensive in Denver when my son, Clay became very ill with the stomach flu and a child with CAH getting the stomach flu can be serious – and that time it was because he ended up in the ER having an adrenal crisis. I came to the Journey because of my fear, deep fear of my son dying – it was paralyzing and heart-wrenching at times. And here I was in Denver, in a hotel room, with paramedics all around and my sweet angel lying there limp with an oxygen mask on. Oh God, give me strength to slow this down because I had to give him a steroid shot – and this was the first time I had ever given it to him. Here I was with trained personnel around me – and they couldn’t ‘legally’ give my son a shot that would save his life. It was up to me. Literally, I had to tell them to ‘stop’ so I could do the one thing that would ‘guarantee’ his survival.
And then the gift…. this week, I got a call from CARES Foundation, the non-profit for congenital adrenal hyperplasia, in which I sit on the board, to go to Washington, D.C. to be the spokesperson/advocate for all EMS nationwide to carry solu-cortef on their trucks and to be able to administer the inject to persons with CAH!
I now know why it all happened that weekend, that way – I was surrounded by the love of Grace and my journey family. Brandon, thank you for sitting in your own fire so that we too can sit in ours - it is in the fire where the Light shines the brightest and our diamond selves sparkle with brilliance, love and Grace. Tears rolled down my cheeks as they are right now, knowing that the gifts of the journey are so simple and real and it permeates all souls. I am so deeply grateful to have these tools so that I can guide emotionally intelligent souls who can feel their feelings and know they are ‘safe, whole, free and loved’.
So I have a wish, a deep desire to create a way, a means for those of us raising children in this paradigm of consciousness, a part of our Journey family, to be able to support one another. To share our trials and errors, words and actions, Love and Grace.
And as my dear friend Dr.Deb’s swami said… in this time of emergency, let’s ‘emerge and see’….. let us see the Light that shines in us, around us, for us and with us – all of us!
Blessed be…..
J.U.
Saturday, February 7, 2009
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